ORCHID

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Overlooked children in need: A study on the development and well-being of children of parents with disabilities


Information

Period

2024-2026/2027

Funder

Forte

Amount

€ 363 000

Project members
  • Can Liu | Stockholm University (PI)
  • Alessandra Grotta | Stockholm University
  • Ayako Hiroshi | Örebro University
  • Ylva B Almquist | Stockholm University
  • Mikael Rostila | Stockholm University

Description

People with disabilities are disproportionately affected by poverty, unemployment, social exclusion, and limited access to healthcare, among other disadvantages, which can affect their children across the life course. However, little is known about the needs of these children in a Swedish context. Our aim is therefore to investigate the association between parental disability and child outcomes from birth to young adulthood, and to evaluate contributing and buffering factors, including the policy environment.

The project will utilise multigenerational linked longitudinal data from Swedish national registers on all children and youth aged 0-30 years (1990-2022). We will study the associations between parental disability status and a range of indicators of child development and well-being, including perinatal health, mental health, child welfare recipiency, and education. Nationally representative survey data will be analysed as a complement to the register information. Mediation analysis will be used to estimate the extent to which adverse factors explain any child outcomes associated with parental disability. We will also evaluate the impact of disability rights legislation on children of parents with disabilities using difference-in-differences analysis.

The project will generate insights into the disadvantages of children of parents with disabilities and identify potential gaps in health and social services available to these families. As such, our findings will provide guidance to parents, policymakers, service providers, and health and care workers to develop needs-based and family-centred care and support.

In Year 1, the project will focus on seeking ethical approval, data updates, and data cleaning. Statistical analyses using in-house data will also begin at receiving ethical approval, allowing sufficient time for manuscript submissions, revisions, dissemination activities, and further analyses in Years 2 and 3. The project will involve a reference group consisting of parents with disabilities and adult children of parents with disabilities. The budget covers part-time salaries for four researchers and compensation for the reference group’s participation.


Most recent news

New project on children of parents with disabilities

The Swedish Research Council for Health, Working Life and Welfare (Forte) has granted €363,000 to the research project “Overlooked Children in Need (ORCHID)”. This project aims to study the development and well-being of children of parents with disabilities. The study seeks to expose the disadvantages these children face, identify gaps in available health and social…

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